tag:blogger.com,1999:blog-4058584755472938227.post1883187303298040600..comments2023-11-29T00:26:58.201-08:00Comments on Just Joshua: Hypoplastic Left Heart Syndrome - HLHS {CHD week}Unknownnoreply@blogger.comBlogger11125tag:blogger.com,1999:blog-4058584755472938227.post-29266307470609273532013-02-28T13:50:12.658-08:002013-02-28T13:50:12.658-08:00Hy I m from Croatia.I Have son name Imbra. He have...Hy I m from Croatia.I Have son name Imbra. He have hlhs. He was haveing two op hearth and dyafragma. Can you send me email jelamostak@gmail.com<br />Anonymoushttps://www.blogger.com/profile/13248881698494032094noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-69449525677077693392012-08-06T08:33:21.694-07:002012-08-06T08:33:21.694-07:00Is this account still active? I have so many quest...Is this account still active? I have so many questions for you and your family! I am about 24 weeks pregnant and my husband and I recently found out that our baby has HLHS. It has been really hard just to process it all. If you still keep this blog updated I would very much appreciate an email back to myself or to my husband<br />Ashley shlaaay_725@hotmail.com<br /> ashley87.ms@gmail.com<br />Myrl ironworker8*@hotmail.comAnonymoushttps://www.blogger.com/profile/10359615707356320888noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-81210028284996213962011-08-06T21:09:00.769-07:002011-08-06T21:09:00.769-07:00Thanks for sharing Joshua's story. 4 weeks ago...Thanks for sharing Joshua's story. 4 weeks ago my husband and I found out that our little baby boy im carrying has HLHS :(. Its been hard for me to come on the internet and not google about it cause im was scared to find out what i would see but tonight I thought why not, then I found your blog. Im so glad that your little boy is doing awesome sure makes me feel good. Thanks so much for sharing.TateFamilyhttps://www.blogger.com/profile/03348698838545176784noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-91391830605375423162010-10-23T08:44:20.422-07:002010-10-23T08:44:20.422-07:00Hi again, well, we have certianly developed alot ...Hi again, well, we have certianly developed alot of questions for you... but the e-mail keeps popping back as undeliverable. <br /><br />we are really sorry to send you the e-mail this way, but we can't figure out how else to ask you the questions. <br /><br />so, here is the email. Perhaps . <br /><br />Hi Allison,<br />This is Cortney (and Chiko and Linda), the OT students. Thank you again for your willingness to talk about Joshua’s story. The pictures you posted are adorable, and your family is beautiful. We cannot imagine the strength that it took for all of you to persevere.<br />We are so excited to get your thoughts and words of advice. While a good grade would be nice, we are most concerned with how to make ourselves good practitioners. We hope that by talking with you, we will be able to educate our classmates about HLHS and also educate them on the best way to interact with the family. We tried to develop the best questions to ask you, but please forgive us if we have to e-mail you a second time. We also apologize if we have asked the same questions that 4967453048 people have asked you.<br />• When your family first found out about Joshua’s condition, how did you react to the information?<br />• What were your main apprehensions when Joshua came out of surgery?<br />• What was the most helpful information (resources) you received?<br />• What was the least helpful information (resources) you received?<br />• Did you receive OT services? If so, what were they?<br />• Did Joshua have a feeding tube? And if he did, how did you introduce solid foods to Joshua?<br />• What challenges did Joshua have after surgery?<br />• Does Joshua have any physical limitations right now?<br />• It appears as though Joshua is around 3 or 4 according to the pictures, is he currently in pre-school or pre-K? If so, how has he adapted to the school environment? Do you notice anything you might want to improve? <br />• Do you notice any learning limitations?<br />• What are your goals for Joshua now?<br />• Does he have any goals?<br />• As health professionals, what are a couple of the top things you would like us to do?<br />• Is there anything that you would like us to know that we didn’t ask?<br /><br />Thank you so much for helping to advance our education, we are looking forward to your responses.<br />All the best for you and your family,<br />Sincerely, <br />Cortney, Chiko and LindaUnknownhttps://www.blogger.com/profile/00402153490001300961noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-77932479464349896202010-10-23T07:44:00.105-07:002010-10-23T07:44:00.105-07:00Allison,
I just read your post - thank you so muc...Allison,<br /><br />I just read your post - thank you so much for your willingness to answer our questions. My group members and I are working hard on our project now, and trying to come up with the best questions to ask you. Stay tuned for an e-mail. It will come from cad50@pitt.edu. Again, thank you so much.Unknownhttps://www.blogger.com/profile/00402153490001300961noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-10371113517158123002010-10-18T15:56:58.009-07:002010-10-18T15:56:58.009-07:00Joshua is an amazing beautiful boy who has amazing...Joshua is an amazing beautiful boy who has amazing support from yourself and family. I wish you all the best for the future and i will keep him close to my heart as i can imagine what you are going through. Very hard having to fight medical issues esp when it is your child. Good luck xxxxMelissaErinNiaJoshhttps://www.blogger.com/profile/00495514522869093493noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-2665884617982999412010-10-15T08:52:16.285-07:002010-10-15T08:52:16.285-07:00Cortney...
I would be happpy for you to share abou...Cortney...<br />I would be happpy for you to share about Joshua with your classmates. YOu can also e-mail me with any questions you may have:<br />allysmith2002(at)gmail.com<br />Thanks for your comment:)allisonhttps://www.blogger.com/profile/01838486184806527822noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-38835980790352096272010-10-15T08:35:31.521-07:002010-10-15T08:35:31.521-07:00Hi There,
Thank you very much for posting this bl...Hi There,<br /><br />Thank you very much for posting this blog. I find the story very inspirational and am very happy to see that Joshua is thriving. The reason I write to you is because I am an Occupational Therapy student, and one of our assignments this semester is to present to our class a presentation on hypoplastic left and right heart syndrome - we would love to include a personal story. would it be ok if we asked you some questions, and possibly share some of the information on your blog with our classmates? thank you very much. Have a great day. All the best. CortneyUnknownhttps://www.blogger.com/profile/00402153490001300961noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-77154409320853688972010-02-10T22:18:45.078-08:002010-02-10T22:18:45.078-08:00Joshua is an amazing little boy and you're an ...Joshua is an amazing little boy and you're an amazing mom. <br /><br />DinaDinahttps://www.blogger.com/profile/11418523728508722038noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-23953905913453722902010-02-10T22:18:37.070-08:002010-02-10T22:18:37.070-08:00I can't believe that it is approaching that ti...I can't believe that it is approaching that time again. It does make sense about him being so much healthier now that hopefully he will get an easier recovery. He definitely deserves that after those other two recoveries. By the way, I sure am glad to have you as a fellow heart mom, too. You have always had the best outlook on Josh's condition and it has helped me to find a similar sense of contentment with Marin's situation.Lindsayhttps://www.blogger.com/profile/01288943358737942184noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-22647071716814670042010-02-10T14:06:17.765-08:002010-02-10T14:06:17.765-08:00I am so happy Joshua is doing so well now...he is ...I am so happy Joshua is doing so well now...he is such a darling little miracle!Herlehy Familyhttps://www.blogger.com/profile/04129107725969328720noreply@blogger.com