tag:blogger.com,1999:blog-4058584755472938227.post2493722268647291710..comments2023-11-29T00:26:58.201-08:00Comments on Just Joshua: The Big Cardiology Check UpUnknownnoreply@blogger.comBlogger11125tag:blogger.com,1999:blog-4058584755472938227.post-37585641090034247052010-11-01T16:49:18.735-07:002010-11-01T16:49:18.735-07:00Allison, I am glad to hear that Josh is doing well...Allison, I am glad to hear that Josh is doing well enough for you and Jon to have somewhat of a say in when he has his Fontan. On the otherhand, reading your post brought tears to my eyes. I remember meeting him when he was only 5 months old. I will keep little Josh in my prayers.Carllahttps://www.blogger.com/profile/12912405809044478096noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-83979604141350975462010-10-23T09:59:53.094-07:002010-10-23T09:59:53.094-07:00Hi Allison- I don't think I've commented b...Hi Allison- I don't think I've commented before on your blog, but I've followed Joshua's story for a little while. My son also has a CHD (double inlet left ventricle) and is also waiting (indefinitely) for his Fontan. I noticed that Joshua had his diaphragm plicated at some point? My son, Luke, had his left diaphragm plicated after his Glenn back in 2007. I wanted to share with you some thoughts from our cardiologist regarding Luke's heavier breathing (especially as he grows). Our cardiologist actually attributes much of that to his paralyzed left diaphragm. He says kids with only one functional diaphragm actually learn to breathe differently, from their belly rather than their chest. He is more and more convinced that Luke's breathing is a function of his diaphragm and not his heart. I just wanted to share that with you so you could maybe ask a few questions around that. It definitely could be something totally unrelated, but I wanted to comment because we felt for a long time that we didn't have any answers as to why Luke breathed hard even though his heart was so strong. I hope this helps a little! Maybe just one more piece to this crazy puzzle!<br /><br />Jesse<br />http://smithfamilyjourney.blogspot.comThe Smith'shttps://www.blogger.com/profile/16667984389064067303noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-10406545313149829082010-10-21T13:11:52.557-07:002010-10-21T13:11:52.557-07:00We love you guys so much and Joshua is just the sw...We love you guys so much and Joshua is just the sweetest little boy. You're family is inspiring and we're all pulling for the little guy.OLIVIAhttps://www.blogger.com/profile/08321897467054492964noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-21547572771011309212010-10-21T00:17:40.118-07:002010-10-21T00:17:40.118-07:00Glad to hear he is stable, and that you are willin...Glad to hear he is stable, and that you are willing to give the time frame to the doctors! Casey also has asthma, but it was not diagnosed until right before his Fontan, due to the fact that heartkids have so many breathing troubles anyway. Good Luck with the breathing treatments. If you can get Josh to like Star Wars, we call it the "Darth Vader Medicine".Gina and the Ganghttps://www.blogger.com/profile/08368713078096257203noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-26767641926743300152010-10-20T15:30:52.428-07:002010-10-20T15:30:52.428-07:00It sounds like it went as well as it possibly coul...It sounds like it went as well as it possibly could have. So happy to hear!<br /><br />Keep up the good work, Josh!Maryhttps://www.blogger.com/profile/03641010483419949594noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-77318220535664854072010-10-20T15:11:06.834-07:002010-10-20T15:11:06.834-07:00So glad to hear that Joshua is stable and doing we...So glad to hear that Joshua is stable and doing well!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-11054568484933281522010-10-20T07:27:23.567-07:002010-10-20T07:27:23.567-07:00I am so glad you got everything you wanted out of ...I am so glad you got everything you wanted out of the appt. The power to have some input especially, since you had said it can be frustrating that they only see Josh on the table where he is FINE! <br /><br />Keep us posted on the results of the breathing treatments and plan of action. He is such a miraculous little man! :)Hetrick familyhttps://www.blogger.com/profile/04464932414484957414noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-48060523163998768782010-10-19T19:43:43.183-07:002010-10-19T19:43:43.183-07:00Happy to hear Josh is stable & completely in a...Happy to hear Josh is stable & completely in awe of your incredible perspective....<br /><br />Anxious to hear what the dr.'s come back with and hoping the breathing treatment helps to get Josh back to his active self :)<br /><br />So amazed by you Josh!The Fiscus Familyhttps://www.blogger.com/profile/01460724813964420753noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-32503598455111892232010-10-19T05:11:11.581-07:002010-10-19T05:11:11.581-07:00That's great news! I hope you have found the ...That's great news! I hope you have found the answer to his shortness of breath as well.<br />Yay Joshua!Andrea Riojashttps://www.blogger.com/profile/01958193183148994142noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-56734595378615740232010-10-19T05:09:31.121-07:002010-10-19T05:09:31.121-07:00That's great news that Joshua is doing so well...That's great news that Joshua is doing so well! It's wonderful that your Dr's work with you so well in giving you some say on when surgery happens. Obviously, the final call is always up to us as parents but it is nice that you get to be so involved with choosing the timing.Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.comtag:blogger.com,1999:blog-4058584755472938227.post-28437777842784710312010-10-19T04:26:00.903-07:002010-10-19T04:26:00.903-07:00That's so wonderful that he's stable enoug...That's so wonderful that he's stable enough to wait a bit on the Fontan! Hopefully you can time it so that it doesn't happen when all the goobers are at their worst aka fall/winter. Crossing my fingers that the asthma treatment works and Joshua gets his energy level back!Wendyhttps://www.blogger.com/profile/16080352553700502661noreply@blogger.com