This week...

 

This week Joshua is going to wear a Holter monitor for 24 hours in preparation for next month's surgery. I'm hoping it'll go well, but you never know with a 3 year old boy...he may decide it's not so much fun being attached to a device after a few hours. I'm going to have to remind him that he's Ironman. We've gotten away with a lot by telling him he's Ironman! Hopefully it'll work again.

On the drive home from UCSF, after having his cath last month, Josh shouted out, "Wait, I didn't get to play in the play room, OR see Dr. Zakie!" I think he was hoping that Jon would flip a U-ey right there on I-80, tires screeching. So naturally, he was thrilled when we told him that we are taking him back to "Sam Francisco" in March.  Of course he doesn't realize what this trip to UCSF entails. As surgery draws near, I will talk to him more about what to expect. I know him well enough to understand what he's ready to hear & when he's ready to hear it.

I am very lucky that he has no negative memories associated with hospitals, doctors or nurses. That's not to say he hasn't had any negative experiences, because after all he has undergone 2 major open-heart surgeries, surgery to repair his diaphragm & pacemaker surgery, requiring two 6 weeks stints in the hospital.  And even after all that, my sweet boy is hopelessly excited to go back. We'll just ride that wave as long as possible.  We know that it will crash ashore inevitably. 

But in the mean time, we'll continue enjoying his cute prayers that go something like this:

"Dear Heavenly Father, thank you for this day, please bless the food & please bless Sam Francisco. In the name of Jesus Christ, Amen."

Whether we are waking up, eating, or going to bed he offers the same prayer. I love my boy.