Yesterday was pretty rough for Joshua. He had a lot of discomfort and restlessness. It made for a very long day. It's all a part of the process, probably the worst part in my opinion. But hopefully the worst has passed. He has done a great job moving around and sitting up etc. He sat on my lap several times out of bed which has been nice. It's good for him to move around.
He had his 3 favorite buddies visit in the evening. Despite the miserable day, it boosted his spirits. It was so nice to be together as a family for a couple hours. We are so appreciative of my parents and sister Molly for taking such good care of our 3 other kids in our absence.
Hopefully today will be a better day. Josh has been moving forward, which is great news. He's had such amazing nurses, so kind and gentle. He has no anxiety because they are so good with him. It makes such a difference.
I've got to run, Josh needs my undivided attention. Thanks for checkin in on us:)
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We have created this blog to tell Joshua's story. Josh was born in 2007 with a congenital heart defect, Hypoplastic Left Heart Syndrome (HLHS - only half of his heart developed) & has undergone 3 open heart surgeries, pacemaker placement as well as surgery to repair his paralyzed diaphragm. He had a very rough beginning, and has hit some bumps along the way but amazes us every day with his ability to live a very active life. Follow us as we try to keep up with him!
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at 20 months Josh...
forms short sentances
never stops talking
continues to climb up everything
is a peacemaker w/ his sisters
weighs 23.5 lbs
never stops talking
continues to climb up everything
is a peacemaker w/ his sisters
weighs 23.5 lbs
at 19 months joshua
loves to swim
speaks quite a bit
climbs up everything
loves to camp
tries riding his tricylce, but needs some help
speaks quite a bit
climbs up everything
loves to camp
tries riding his tricylce, but needs some help
at 18 months Joshua
can catch a ball
runs everywhere he goes
ever expanding vocabulary
climbs like a mountain goat
eats anything in sight (like a billy goat)
beats up his Dada
very coordinated
says "what the?" when something surprises him
runs everywhere he goes
ever expanding vocabulary
climbs like a mountain goat
eats anything in sight (like a billy goat)
beats up his Dada
very coordinated
says "what the?" when something surprises him
At 17 months Joshua...
anxiously watches for Semi-trucks as we drive & yells "tractor" when he sees one
walks the whole way around the block
reminds me he needs his meds
hides toys in the toilet (this is bad)
things I've found in the toilet:
a football
blocks
a full roll of toilet paper
mulitple empty rolls
a small soccer ball
walks the whole way around the block
reminds me he needs his meds
hides toys in the toilet (this is bad)
things I've found in the toilet:
a football
blocks
a full roll of toilet paper
mulitple empty rolls
a small soccer ball
At 16 months Josh...
says 15-20 words 'Amen', 'Grandma' & 'Doctor' (his newest words)
winks
roars like a tiger
follows simple directions
communicates very well with & without words
jumps on the trampoline (with adult supervision:)
winks
roars like a tiger
follows simple directions
communicates very well with & without words
jumps on the trampoline (with adult supervision:)
At 15 months Joshua...
wrestles his big sisters
helps clean up (a little anyway:)
tries new words and sounds daily
isn't as scared leaving mommy's side
flirts like crazy
makes animal sounds
helps clean up (a little anyway:)
tries new words and sounds daily
isn't as scared leaving mommy's side
flirts like crazy
makes animal sounds
At 14 months Josh...
weaned from breast milk
walks
say 10+ words
puts 2 words together
feeds himself
can crawl at lightning speed
makes anyone smile
9 teeth (3 are molars)
walks
say 10+ words
puts 2 words together
feeds himself
can crawl at lightning speed
makes anyone smile
9 teeth (3 are molars)
5 comments:
Day 2 is always the hardest! I'm so glad he had time with his fav three. I hope you guys get a little sleep and Josh starts to feel better!
So glad he is doing SO well! Praying Josh will become more comfortable as healing continues.
We are glad to see an update! I hope that he can get over the initial pain hump quickly so that you can both be a little more comfortable! I am glad you have great nurses. They really make all of the difference in the world!
:( Poor Joshie. It makes me so sad to picture him uncomfortable. I really hope he gets through this part quick and is back to his rowdy self soon. I am so glad the girls and Sammy were able to brighten his day (yours and Jon's too--I'm sure). Sending lots of love your way. Thanks for all the great updates!
I am so happy to hear that Josh is doing well...he is in our thoughts and prayers! Hang in there...sleeping in a hospital is very TOUGH!
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