Hi, I'm a complete stranger, but yesterday my husband and I found out our son (due April 4) has HLHS and of course we immediately googled it. We are delighted to have found your blog--what hope it gives us! Thank you for sharing your story.
We have created this blog to tell Joshua's story. His is a story of hope & happiness! Joshua was born with a congenital heart defect, Hypoplastic Left Heart Syndrome (HLHS - only half of his heart fully developed) & has undergone 3 open heart surgeries, pacemaker placement as well as surgery to repair his paralyzed diaphragm. He has had a very rough beginning, but is now doing extraordinarily well. Follow us as we do our best to keep up with him!
forms short sentances never stops talking continues to climb up everything is a peacemaker w/ his sisters weighs 23.5 lbs
at 19 months joshua
loves to swim speaks quite a bit climbs up everything loves to camp tries riding his tricylce, but needs some help
at 18 months Joshua
can catch a ball runs everywhere he goes ever expanding vocabulary climbs like a mountain goat eats anything in sight (like a billy goat) beats up his Dada very coordinated says "what the?" when something surprises him
At 17 months Joshua...
anxiously watches for Semi-trucks as we drive & yells "tractor" when he sees one walks the whole way around the block reminds me he needs his meds hides toys in the toilet (this is bad)
things I've found in the toilet:
a football blocks a full roll of toilet paper mulitple empty rolls a small soccer ball
At 16 months Josh...
says 15-20 words 'Amen', 'Grandma' & 'Doctor' (his newest words) winks roars like a tiger follows simple directions communicates very well with & without words jumps on the trampoline (with adult supervision:)
At 15 months Joshua...
wrestles his big sisters helps clean up (a little anyway:) tries new words and sounds daily isn't as scared leaving mommy's side flirts like crazy makes animal sounds
At 14 months Josh...
weaned from breast milk walks say 10+ words puts 2 words together feeds himself can crawl at lightning speed makes anyone smile 9 teeth (3 are molars)
4 comments:
This is the best family picture you guys have taken, yet! Haha.
I seriously love this picture and their costumes. Callie's face is what puts this pic over the top for me!
Oh my goodness - ADorable!!! Love this!
So cute!
Hi, I'm a complete stranger, but yesterday my husband and I found out our son (due April 4) has HLHS and of course we immediately googled it. We are delighted to have found your blog--what hope it gives us! Thank you for sharing your story.
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