As I mentioned before, Monday started out as a regular visit to the cardiologist.
But turned into this.....
Which really wasn't all that bad.
Joshua was admitted on Monday & released on Thursday. He was on a few IV meds & lost a lot of the fluid his body had been holding onto.
As far as hospital stays go, it was pretty short & only involved 3 pokes, which is pretty lucky for a heart kid spending 4 days in ICU. Since we were so close to home this time instead of UCSF he had a ton of visitors. Joshua always loves having visitors - so being close to home was nice! BUT we did miss that feeling of family at UCSF...we have become so close to the nurses and doctors there and we love them & miss them.
The whole experience overall was positive, because his state wasn't as critical as we are used to during hospitalizations. So he had a lot of fun. Don't get me wrong, he definitely had his share of difficult moments & sadness. But they were just moments.
We had many family members & friends help out in various ways. You realize at times like this how truly blessed you are to have them in your life. We are so grateful for all of you.
Joshua was released yesterday & now we are home getting used to all of the new meds & relaxing. Trying to catch up on sleep. Even though the stay was pretty low key, not much sleeping ever takes place in a hospital room. So our plan for the next few days...sleep!
We have created this blog to tell Joshua's story. Josh was born in 2007 with a congenital heart defect, Hypoplastic Left Heart Syndrome (HLHS - only half of his heart developed) & has undergone 3 open heart surgeries, pacemaker placement as well as surgery to repair his paralyzed diaphragm. He had a very rough beginning, and has hit some bumps along the way but amazes us every day with his ability to live a very active life. Follow us as we try to keep up with him!
forms short sentances never stops talking continues to climb up everything is a peacemaker w/ his sisters weighs 23.5 lbs
at 19 months joshua
loves to swim speaks quite a bit climbs up everything loves to camp tries riding his tricylce, but needs some help
at 18 months Joshua
can catch a ball runs everywhere he goes ever expanding vocabulary climbs like a mountain goat eats anything in sight (like a billy goat) beats up his Dada very coordinated says "what the?" when something surprises him
At 17 months Joshua...
anxiously watches for Semi-trucks as we drive & yells "tractor" when he sees one walks the whole way around the block reminds me he needs his meds hides toys in the toilet (this is bad)
things I've found in the toilet:
a football blocks a full roll of toilet paper mulitple empty rolls a small soccer ball
At 16 months Josh...
says 15-20 words 'Amen', 'Grandma' & 'Doctor' (his newest words) winks roars like a tiger follows simple directions communicates very well with & without words jumps on the trampoline (with adult supervision:)
At 15 months Joshua...
wrestles his big sisters helps clean up (a little anyway:) tries new words and sounds daily isn't as scared leaving mommy's side flirts like crazy makes animal sounds
At 14 months Josh...
weaned from breast milk walks say 10+ words puts 2 words together feeds himself can crawl at lightning speed makes anyone smile 9 teeth (3 are molars)