Josh asked me, "Mommy, when do I get to be a rega-ler boy who doesn't take lots of medicine?".
Breaks my heart. Some days this journey is really hard.
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We have created this blog to tell Joshua's story. Josh was born in 2007 with a congenital heart defect, Hypoplastic Left Heart Syndrome (HLHS - only half of his heart developed) & has undergone 3 open heart surgeries, pacemaker placement as well as surgery to repair his paralyzed diaphragm. He had a very rough beginning, and has hit some bumps along the way but amazes us every day with his ability to live a very active life. Follow us as we try to keep up with him!
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at 20 months Josh...
forms short sentances
never stops talking
continues to climb up everything
is a peacemaker w/ his sisters
weighs 23.5 lbs
never stops talking
continues to climb up everything
is a peacemaker w/ his sisters
weighs 23.5 lbs
at 19 months joshua
loves to swim
speaks quite a bit
climbs up everything
loves to camp
tries riding his tricylce, but needs some help
speaks quite a bit
climbs up everything
loves to camp
tries riding his tricylce, but needs some help
at 18 months Joshua
can catch a ball
runs everywhere he goes
ever expanding vocabulary
climbs like a mountain goat
eats anything in sight (like a billy goat)
beats up his Dada
very coordinated
says "what the?" when something surprises him
runs everywhere he goes
ever expanding vocabulary
climbs like a mountain goat
eats anything in sight (like a billy goat)
beats up his Dada
very coordinated
says "what the?" when something surprises him
At 17 months Joshua...
anxiously watches for Semi-trucks as we drive & yells "tractor" when he sees one
walks the whole way around the block
reminds me he needs his meds
hides toys in the toilet (this is bad)
things I've found in the toilet:
a football
blocks
a full roll of toilet paper
mulitple empty rolls
a small soccer ball
walks the whole way around the block
reminds me he needs his meds
hides toys in the toilet (this is bad)
things I've found in the toilet:
a football
blocks
a full roll of toilet paper
mulitple empty rolls
a small soccer ball
At 16 months Josh...
says 15-20 words 'Amen', 'Grandma' & 'Doctor' (his newest words)
winks
roars like a tiger
follows simple directions
communicates very well with & without words
jumps on the trampoline (with adult supervision:)
winks
roars like a tiger
follows simple directions
communicates very well with & without words
jumps on the trampoline (with adult supervision:)
At 15 months Joshua...
wrestles his big sisters
helps clean up (a little anyway:)
tries new words and sounds daily
isn't as scared leaving mommy's side
flirts like crazy
makes animal sounds
helps clean up (a little anyway:)
tries new words and sounds daily
isn't as scared leaving mommy's side
flirts like crazy
makes animal sounds
At 14 months Josh...
weaned from breast milk
walks
say 10+ words
puts 2 words together
feeds himself
can crawl at lightning speed
makes anyone smile
9 teeth (3 are molars)
walks
say 10+ words
puts 2 words together
feeds himself
can crawl at lightning speed
makes anyone smile
9 teeth (3 are molars)
8 comments:
Oh sweet Joshua... this post brings me tears. Praying that this medication helps and that you can get rid of some of it sooner than later. (((hugs))) mama- I'm sure that was a tough one. :(
Ugh!! That is impossibly hard.
We love you guys and my heart breaks for you during the really hard parts of this journey. :(
I appreciate these raw, honest posts. Thanks for sharing the tough times too, Ally.
Josh,
Super heros aren't rega-ler. And you will always be a super hero to us.
Love,
Cousin Amy
p.s. I am STILL driving home from Target!! Can you BELIEVE how far away I live!!!! :)
Oh man, this made me cry, too. Sweet, sweet Joshua. <3 you big man!
Oh Josh! You really do break my heart.
I'm so sorry you have to take so many medicines and have so many difficult hurdles in life. You are very lucky to have an awesome mom that goes above and beyond for you. A dad that works his butt off to give you what you need most. Doting older sisters that love you. And that crazy little sidekick, Sammy.
We love you Josh!
Ohh Josh, keep fighting. I can't imagine hearing that in a few years. I hope things turn around for him soon, lots of prayers
Josh.. you are way COOLER than rega-ler boys!! You get to take super medicine that gives you awesome powers. Like the force of the Jedi and Spiderman. That's what I tell Owen and he thinks it's pretty dang awesome!!
It does stink sometimes and it's kinda gross, but you are getting stronger everytime you take your meds. :)
oh that breaks my heart. what a sweet boy....
Makes me cry, and reminds me of the scripture: Alma 11:44. "Now, this restoration shall come to all...and even there shall not so much as a hair of their heads be lost; but every thing shall be restored to its perfect frame...".
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