Wednesday, January 09, 2013

Moving right along...

Since I last posted Joshua has visit the cardiologist 3 times.  That sure sounds like a lot but, they want to keep a close eye on Josh and try to get his heart back to 'normal'.   Today we finally saw Dr. Rivera again & we were so very happy to be reunited with him!  The past month and a half we have gotten to know all of the cardiology team & they are all wonderful!  But we've got a long history with Dr. Rivera & he feels like family after all these years.  The first thing Josh said as we left today was, "I'm sure glad we saw Dr. Rivera today."
Now, for the report...It looks like Josh's body is responding well to the new doses of medications. At each visit they have tweaked his dosage and they feel like they've got him all dialed in now.  He will have some blood work done tomorrow and that should confirm whether or not they'll keep him where he's at currently.  We feel pretty good about that.
It's interesting to watch Joshua evolve as he has gotten older, and understands a lot more than he used to.   He's such a good little kid and though he often has to have blood work done & do tests that he'd rather not, or lay in an uncomfortable position for a long time as they preform his echo, he always goes with the flow and never gives anyone any trouble.  I'm so proud of how mature he is & his ability to handle himself.  I know often he's not thrilled to be in this situation, but instead of throwing a fit & making it a difficult situation he'll quietly ask me, "Mom, can we just leave?" or, "How much longer do I have to do this, mom?" I truly feel blessed that he has the patience to behave and do as he's asked during these appointments, as well as during hospitalizations.

 Josh and Dr. Shirai - We got to know him well in Dr. Rivera's absence. :)

Well, thanks to today's good report he gets to go 2 months before he has to be seen again! In the mean time, we'll do our best to keep him healthy and moving in the right direction.

Thanks for checking in on our Josh! :)


Liz said...

I'm so glad to hear that he's doing so well. Such great news!

Hetrick family said...

Hooray Josh.
SO very happy to hear the good news!!
He looks so very grown up in that picture.
Just straight up handsome.

Katie said...

So happy to read that he's doing better and responding to the meds! Like Josh, Maddie has always been patient and well-behaved during procedures she'd rather not do either...we're lucky to have them to aspire to! I enjoy reading about Josh and he's captured our hearts since we first began reading long ago... enjoy the 2 month break!

Heidi McMillan said...

Yeah for the good report!

The Laws said...

Thanks for the update! I am glad to hear that Josh is doing well and will have a break from the Dr. I am so impressed by the way you describe his behavior. Way to go Josh!