(Glenn procedure, 4 months old - 2/12/2008 one day post-op)
This week is Congenital Heart Defect Awareness week, and I intend to spread awareness. After all, that's what this blog is all about- sharing my broken-hearted baby's story. Never in a million years did I expect this week would have any significance in my life....that is, until this day.You never know what life has in store, but as we learned, CHD are much more common than you'd think. Here are a few quick facts about CHD's:
- CHD's are the number one birth defect and the number one cause of death from birth defects
- one out of a hundred babies are born each year with a CHD
- nearly twice as many children die from CHD's in the U.S. each year as die from all forms of childhood cancers combined
More research funding, more heart donors, more early detection and intervention, education and support. Pretty simple.
Stay tuned this week for more about CHD's...
5 comments:
Gosh. This picture brings it all back, doesn't it?
I don't even think of Joshie as having a heart defect anymore. He's so active, and healthy, and busies himself with trouble-making, and all things 'boy'.
It makes me so sad to remember him in this condition, but what a miracle he has proven to be.
Josh, you are an inspiration to 'heart' and non-'heart' patients alike! Keep up the good work of living your life the way it should be lived- to the fullest!
We love you, Josh!
Yes Mary, it brings it all back. Looking at this picture, I remember it all so clearly - yet I tend to forget day to day because he's done so amazingly well. He is an insiration!
Wow. He sure looks like Josh in that picture... the Josh I know... even as a baby! I just found this blog... I look forward to reading Josh's story and hearing more about CHDs. Make sure to include info on where you recommend making donations.
I second everything Mary said...Had to believe that is even the same boy!
We love you Josh... so darn much!
What a miracle boy. that is wild that he had his surgery during chd week.
I pray he only continues to make everyone forget about that little broken heart of his.
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