Josh will head to UCSF in about 2 weeks to have his fenestration (hole in his heart) closed. Normally, I think I would be nervous, but I have been a little worried about Joshua's health & there is no better place for him to be than UCSF. So I welcome the experience because at least we'll know where we stand. Josh is thrilled to go back .Talk about short term memory, ha! He can't wait for the french fries and milk shakes...me, too actually.
He asked if he'll need "an I.B."...he realizes that we are going for a procedure. We talked a bit about it and he's okay with it, surprisingly not nervous. Like I said he's looking forward to the hospital food. Go figure. Anyway, hopefully once he has this procedure he'll be a pinker kid. He seems pretty darn blue some times. I think I'll ask them about his diaphragm while we are there because he breathes harder than I like to see, and before his Fontan they felt like it was contributing to his shortness of breath. It's probably wishful thinking that it could be as simple as his paralyzed diaphragm, but I'll wish any how. Some times all you can really do is wish & pray.