Tuesday, October 06, 2009
Over the past couple of weeks I've noticed Josh has been getting short of breath at times when he normally wouldn't. It has gotten to the point that climbing the stairs leaves him huffing & puffing for a couple of minutes. It makes me so sad to see him work hard doing everyday activities. I know that it comes with the territory, but for so long he's shown no signs that he has any health issues. So I guess I've convinced myself that he's healthy, when in reality he's got a very serious heart defect. I do my best not to dwell on "what if..." because I just want to enjoy every second while he's thriving. I don't want to waste that time worrying, & then one day look back at his life with regret that we didn't enjoy it, rather we spent all of our time worrying. I guess everyone copes with a sick child in their own way, but for me, denial works just fine. I feel like it's healthy, I feel like it allows him to live a totally normal life. Maybe I'm wrong.
Anyway, I can't deny that I see him struggling a bit more each day and so we're headed in to see Dr. Rivera tomorrow. I can't imagine him saying "He's doing great!" like we're so used to hearing. I don't see how that can be possible, based off his shortness of breath over the past few weeks.
I am praying that he just needs a "tune up" in the form of a cath. I say that as if it's easy. It isn't, but it's better than the alternative.
Anyway, that's the latest, please pray that Joshua will remain as strong and healthy as possible. Also that his nerves will be calmed as he goes through another day of appointments. Thank you so much for checking in on Joshua. I'll update when I know what's going on (that's the plan anyway).
Posted by allison